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Keywords: Human genomics 

  • WEBINAR: Establishing Gen3 to enable better human genome data sharing in Australia

    16 February 2022

    WEBINAR: Establishing Gen3 to enable better human genome data sharing in Australia https://staging.dresa.org.au/events/webinar-establishing-gen3-to-enable-better-human-genome-data-sharing-in-australia Australian human genome initiatives are generating vast amounts of human genome data. There is a desire and need to share data across projects but researchers face significant infrastructural, technical and administrative barriers in achieving this. To efficiently share and distribute their genome data they need scalable services and infrastructure that: is easily administered; allows for the efficient data management; enables sharing and interoperability; and is aligned with global standards for human genome data sharing. Australian BioCommons has brought together a team from[ Zero Childhood Cancer](https://www.zerochildhoodcancer.org.au/) (Zero), the[ University of Melbourne Centre for Cancer Research](https://mdhs.unimelb.edu.au/centre-for-cancer-research/home) (UMCCR),[ Australian Access Federation](https://aaf.edu.au/) and[ Melbourne Bioinformatics](https://www.melbournebioinformatics.org.au/) to explore the use of Gen3 technology. Establishing systems for easier management and sharing of their human genome data holdings is no simple task, and the group wants to ensure that other Australian providers and Institutions can benefit from their experience and easily deploy the same solution in the future. [Gen3](https://gen3.org/) is an open source software suite that makes use of private and public clouds to tackle the challenges of data management, interoperability, data sharing and analysis. It has been used in several very large NIH-funded projects that collectively house and describe data derived from hundreds of thousands of human samples (e.g.[ NCI Genomic Data Commons](https://gdc.cancer.gov/),[ BloodPAC](https://www.bloodpac.org/),[ BrainCommons](https://www.braincommons.org/),[ Kids First Data Commons](https://kidsfirstdrc.org/)). In this webinar you’ll hear from UMCCR and Zero about their experiences and progress towards establishing Gen3 instances to better enable better human genome data sharing in Australia. They will outline the challenges and opportunities that have arisen through this Australian BioCommons project and demonstrate the capabilities of Gen3 for human genome research. **Date/time:** 16 February 2022 - 13:00-14:00 AEDT/ 12:00-13:00 AEST / 12:30 - 13:30 ACDT / 10:00-11:00 AWST **How to join:** This webinar is free to join but you must [register for a place](https://unimelb.zoom.us/webinar/register/WN_ZDfeLU_RT9CS9anotCpzZQ) in advance. 2022-02-16 13:00:00 UTC 2022-02-16 14:00:00 UTC Australian BioCommons Online, Australia Online Australia Australian Biocommons Melissa Burke (melissa@biocommons.org.au) [] [] 500 webinar open_to_all Data sharingHuman genomicsGenomicsClinical Bioinformaticsclinical genomics

  • WEBINAR: Protection of genomic data and the Australian Privacy Act: when is genomic data ‘personal information’?

    6 April 2022

    WEBINAR: Protection of genomic data and the Australian Privacy Act: when is genomic data ‘personal information’? https://staging.dresa.org.au/events/webinar-protection-of-genomic-data-and-the-australian-privacy-act-when-is-genomic-data-personal-information It is easy to assume that genomic data will be captured by legal definitions of ‘health information’ and ‘genetic information’, but the legal meaning of ‘genetic information’ need not align with scientific categories. There are many different types of genomic data, with varied characteristics, uses and applications. Clarifying when genomic data is covered by the Privacy Act 1988 (Cth) is an ongoing evaluative exercise but is important for at least 3 reasons: 1. those subject to the Privacy Act need to be able to confidently navigate their responsibilities 2. understanding current controls is a prerequisite for meaningful external critique (and this is particularly important at a time when the Privacy Act is under review), and 3. while legislation that applies to state public sector agencies is generally distinct from the Privacy Act there are similarities that extend the relevance of the question when is genomic data ‘personal information’ under the Privacy Act? In this presentation, Mark will explore the relationship between the legal concept of genetic information and the concept of genomic data relevant to health and medical research, reflect on the characteristics of each, and the possibility of more clearly identifying the legal rights and responsibilities which attach to the use and disclosure of genomic data in the future. **Speaker:** Mark Taylor, Professor in Health Law and Regulation, Melbourne Law School; Director, Health, Law and Emerging Technologies (HeLEX), University of Melbourne. **How to join:** This webinar is free to join but you must [register for a place in advance](https://unimelb.zoom.us/webinar/register/WN_zC3MlCjAQUq7sTVw8idvLA). 2022-04-06 12:00:00 UTC 2022-04-06 13:00:00 UTC Australian BioCommons Australian BioCommons Melissa Burke (melissa@biocommons.org.au) [] [] [] open_to_all EthicsHuman genomicsData privacyBioinformatics

  • WEBINAR: Establishing Gen3 to enable better human genome data sharing in Australia

    16 February 2022

    WEBINAR: Establishing Gen3 to enable better human genome data sharing in Australia https://staging.dresa.org.au/events/webinar-establishing-gen3-to-enable-better-human-genome-data-sharing-in-australia Australian human genome initiatives are generating vast amounts of human genome data. There is a desire and need to share data across projects but researchers face significant infrastructural, technical and administrative barriers in achieving this. To efficiently share and distribute their genome data they need scalable services and infrastructure that: is easily administered; allows for the efficient data management; enables sharing and interoperability; and is aligned with global standards for human genome data sharing. Australian BioCommons has brought together a team from[ Zero Childhood Cancer](https://www.zerochildhoodcancer.org.au/) (Zero), the[ University of Melbourne Centre for Cancer Research](https://mdhs.unimelb.edu.au/centre-for-cancer-research/home) (UMCCR),[ Australian Access Federation](https://aaf.edu.au/) and[ Melbourne Bioinformatics](https://www.melbournebioinformatics.org.au/) to explore the use of Gen3 technology. Establishing systems for easier management and sharing of their human genome data holdings is no simple task, and the group wants to ensure that other Australian providers and Institutions can benefit from their experience and easily deploy the same solution in the future. [Gen3](https://gen3.org/) is an open source software suite that makes use of private and public clouds to tackle the challenges of data management, interoperability, data sharing and analysis. It has been used in several very large NIH-funded projects that collectively house and describe data derived from hundreds of thousands of human samples (e.g.[ NCI Genomic Data Commons](https://gdc.cancer.gov/),[ BloodPAC](https://www.bloodpac.org/),[ BrainCommons](https://www.braincommons.org/),[ Kids First Data Commons](https://kidsfirstdrc.org/)). In this webinar you’ll hear from UMCCR and Zero about their experiences and progress towards establishing Gen3 instances to better enable better human genome data sharing in Australia. They will outline the challenges and opportunities that have arisen through this Australian BioCommons project and demonstrate the capabilities of Gen3 for human genome research. **Date/time:** 16 February 2022 - 13:00-14:00 AEDT/ 12:00-13:00 AEST / 12:30 - 13:30 ACDT / 10:00-11:00 AWST **How to join:** This webinar is free to join but you must [register for a place](https://unimelb.zoom.us/webinar/register/WN_ZDfeLU_RT9CS9anotCpzZQ) in advance. 2022-02-16 13:00:00 UTC 2022-02-16 14:00:00 UTC Australian BioCommons Online, Australia Online Australia Australian Biocommons Melissa Burke (melissa@biocommons.org.au) [] [] 500 webinar open_to_all Data sharingHuman genomicsGenomicsClinical Bioinformaticsclinical genomics

  • WEBINAR: Protection of genomic data and the Australian Privacy Act: when is genomic data ‘personal information’?

    6 April 2022

    WEBINAR: Protection of genomic data and the Australian Privacy Act: when is genomic data ‘personal information’? https://staging.dresa.org.au/events/webinar-protection-of-genomic-data-and-the-australian-privacy-act-when-is-genomic-data-personal-information It is easy to assume that genomic data will be captured by legal definitions of ‘health information’ and ‘genetic information’, but the legal meaning of ‘genetic information’ need not align with scientific categories. There are many different types of genomic data, with varied characteristics, uses and applications. Clarifying when genomic data is covered by the Privacy Act 1988 (Cth) is an ongoing evaluative exercise but is important for at least 3 reasons: 1. those subject to the Privacy Act need to be able to confidently navigate their responsibilities 2. understanding current controls is a prerequisite for meaningful external critique (and this is particularly important at a time when the Privacy Act is under review), and 3. while legislation that applies to state public sector agencies is generally distinct from the Privacy Act there are similarities that extend the relevance of the question when is genomic data ‘personal information’ under the Privacy Act? In this presentation, Mark will explore the relationship between the legal concept of genetic information and the concept of genomic data relevant to health and medical research, reflect on the characteristics of each, and the possibility of more clearly identifying the legal rights and responsibilities which attach to the use and disclosure of genomic data in the future. **Speaker:** Mark Taylor, Professor in Health Law and Regulation, Melbourne Law School; Director, Health, Law and Emerging Technologies (HeLEX), University of Melbourne. **How to join:** This webinar is free to join but you must [register for a place in advance](https://unimelb.zoom.us/webinar/register/WN_zC3MlCjAQUq7sTVw8idvLA). 2022-04-06 12:00:00 UTC 2022-04-06 13:00:00 UTC Australian BioCommons Australian BioCommons Melissa Burke (melissa@biocommons.org.au) [] [] [] open_to_all EthicsHuman genomicsData privacyBioinformatics

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